Tuesday, July 31, 2012

Straight

Molly with our beloved friend 'like a daughter' Rachel who will be having scoliosis surgery next month!  Molly believes she is braver because she went first!


Wow. Saw xrays today and our Molly is so much straighter!  It is pretty amazing to see the difference!  In 10 hours she went from 56 degrees on top and 86 degrees on bottom to 34 and 45 degrees! 
Pain kicked in last night about 11:15 pm and she finally fell into a good sleep about 5:00 am.  Thank you versed.  This of course was just in time for morning labs, Dr. calls, and rounds. :)  No sleep for this mama.
We were then casted for back brace....thank you valium. She was not a happy person at that point but  blue butterflies to match her blue butterfly leg braces made her smile shine. Hopefully the brace will be temporary until her body heals fully from the surgery. We then moved rooms, a praise, we are out of ICU and stats are great!  Prayer for continued lung function, pain management, and no infection!
Thank you for all the prayers and encouragement and LOVE!  We have definitely felt loved and wrapped in our Father's grace!
Today was a long day but our sweetie is resting now.
Goodnight from our new home A336!

Monday, July 30, 2012

Singing Praises!

Molly breathing on own! Singing out here! Praising! did awesome coming off breathing tube. impressed the nurses. She has been sleeping comfortably and now this mama is off to sleep too. Thank you ALL for the prayers, well wishes, and LOVE! We felt so encouraged ALL day and thanking God tonight for bringing his Gal Molly this far.  She is our brave and courageous girl!
Be strong and Courageous for the Lord your God is with you wherever you go. 
Joshua 1:9
 

Surgery 4:10




Met with Dr. and Molly is doing well.  She tolerated anesthesia well...answered prayer.  She now has 12 screws and 2 rods in her tiny back.  Dr. says "They look good."  Hmmmmmm?
Biggest concern is coming off ventilator at this point.  We do know she will have a brace and that her tiny bones tolerated the hardware.  I will leave the details of operation to your imagination.
Prayers for being weaned off ventilator and pain tolerance.  We will be able to see our gal in about 1/2 an hour.

God is Good!

Surgery 3:00



Rods are in... They will clean her, stitch her up and we will see the Dr. in about one hour and then our fighter gal within 2!  Nurse said she is tolerating the anesthesia well!
Praising Him.

Surgery 12:20



Screws are in place...placing rod in now.  We are about halfway through and she seems to be doing well.  Pray for continued lung function for our Princess Lover!

Surgery Day



Our beautiful gal just went back to OR.   She was so relaxed the anesthesiologist thought she had already been given the sleepy drugs. 
We know God, her almighty creator, will wrap her in love today.
Please continue to PRAY.

Friday, July 27, 2012

Preparing


On Monday morning at 7:30 our precious Molly will have her scoliosis surgery. We will be heading to Cincinnati Children's on Sunday night for pre op observation and most likely be in the hospital 7-10 days.

We are prepared...We believe in our strong girl and we have such faith that God will be with her, with Dr. Jain as he operates and with the follow up care of the nurses but...we are her parents...

Parents who have loved her for 2 years.
Parents who paper chased for one year to bring her home.
Parents who traveled 1/2 way around the world to meet her.
Parents who feel like she has always been a part of our family.
Parents who would do anything for her.
Parents who love her unconditionally.
Parents who know the "path" of being her mom and dad will not be easy BUT she is ours and a gift from our Almighty Creator and we love her.
Which in our human nature we do worry...

Please join us in prayer for:

wisdom and skilled hands for Dr. Jain
compassionate nurses during follow up care
Molly to be easily weaned off ventilator after surgery
pain tolerance for her in the days and weeks following surgery
surgery to be successful
siblings of Molly who will be home with Grandma
that our anxieties will be cast on Him

Give all your worries to him, because he cares for you.
              1Peter5:7






Thursday, July 12, 2012

Hearts of Love and....

a little preparation...
The heat of summer and upcoming surgery for Molly led Bill to do something a little crazy...something never done before in the Wagner house....BRIBERY for cutting inches off hair.  Well, Lilian and Molly took him up on the offer, which is too embarrassing to post, but let's just say, we will be eating hotdogs the rest of the month while the girls savor being "rich'! 
Today was the big day and the girls did wonderful trimming cutting their locks.  They were proud to be donating to Locks of Love and of course, the BRIBE, is now burning a hole in their pocket!








Wednesday, July 4, 2012

Our Clam...48 Hours





Our clam had a great day...


xrays? clear
heart monitor? done
blood pressure? perfect
solids? eaten
iv? out (Molly was quite happy about that)
24 hour gtube test?  tolerated well
teaching lesson mom and dad?  Still learning to crimp and clamp :)
antibiotics? done
ready for home? YES

Hoping to leave tomorrow....our patient has done so well.
We are so proud of our BRAVE DAUGHTER and...
so so PROUD of siblings who did awesome at home with Grandma and Aunt! 

Tuesday, July 3, 2012

Our Clam...24 hours

Quick update...had a great day all went well.  She started her new feeding tube at 9:00 pm and all seems to be working!  Molly is the BEST patient ever!  Out of ICU...moved to new room at 5:00 and new room again at 7:00.  Definitely seeing the sights of the hospital.
Off to bed....or off to fall into a peaceful hospital nighttime stay!

Our Clam...Day After




Molly did wonderful last night, even with all the interrupted sleep and nurses poking and prodding. She really started to wake up about 4:00 am but rested fine after some tylenol. She is off BIPAP now and breathing great! PRAISE!
TV on and no Pediasure today....she is one happy little clam!

Monday, July 2, 2012

Our Clam Updated Again

Quick update... Our gal is out of surgery and doing well in Intensive Care. She is breathing on her own with BIPAP assist as precaution. She asked to see mom and dad as soon as the tube was out, has responded to questions, said her stomach and throat hurt but has really not woken up fully. Surgeon said she did great and graced us with some photos of our beautiful gal's stomach and intestines....hmmmmm. Really did not need to see those. Praising God for his watchful eye!

Our Clam UPDATED

It is 5:30.  We just left Molly in great hands with our Heavenly Father now watching over her.  Once again, she charmed the anesthesiologists...leaving a beautiful flower drawn with ink pen on the hand of the nurse...signed 'Molly' of course.  She told them the wait was fine as she was able to enjoy the day watching Barbie movies and playing Mario games. :)

OUR CLAM



Just a quick update...surgery was to be at 11:30 but we are delayed until about 3:00. Molly is enjoying computer time and has shown no signs of apprehension or being nervous. She awoke today happy as a clam because she did not have to drink her Ensure. So Molly! Thank you for all the comments and emails and especially for the prayer! We are blessed with such wonderful friends and family! I will try to update here later today.

Sunday, July 1, 2012

Surgery

Please pray for our charming Molly. We leave tomorrow for Cinci Children's where Molly will be getting a gtube. This is a precursor to her scoliosis surgery at the end of the month. She will need the nutrition and weight after surgery to help her to have the best outcome possible. Sorry for the short entry. We just returned from Florida. Dayton was hit by a big storm on Friday and we have no electricity and it is 90 degrees...ugh! The things we learn as parents of an MD child. No electricity means no Bipap or cough assist! Thankfully we have wonderful friends who invited us for the night...even though they already have company! I will try to update from Cinci!