Sorry...no pics...she is adamant this time that I do NOT post pictures. I have promised no sharing pics until she is looking like a beauty queen!
Our brave Molly is enduring much but she is strong and courageous. She has her shining Molly moments when pain is doable and then there are other times...brace time, breathing treatment time, sitting in a chair, back xrays...that there is so much to endure but Molly always pulls through and comes out on the other side!
Dr's are working on managing her heart and respiratory rates....much higher than they would like to see them. Past 3 lung xrays have shown improvement but with her compromised lung function already they are staying on top of it. Thankfully we are at an awesome pulmonary children's hospital who are proactive rather than reactive. Praises for living so close to this gold mine of child care. Nurses have been wonderful and today Molly had her sense of humor back and her chattiness...well let's say until the PT brought the brace out and told her we were going to have her sit up.
Prayers for improved respiratory and pain management for our shining gal.
PS: How could it be that in a 15 X 15 room a mom cannot get her teeth brushed until 11:00??? Hmmmm....working on my own goals here!
Please let Molly know that we are all thinking of her. Also, please let us know when we can visit. More importantly, please let me know when I can come sit with her so you can get some sleep. I'm happy to do a "middle night" - seriously, you've got to be beat! Hugs and kisses!
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