We finally have some answers to our sweet girl's muscle atrophy. After four months of doctor appointments and tests we received genetic tests back with the results that we were prepared to receive but praying it was not. Our sweet girl has Congenital Muscular Dystrophy, specifically Collagen VI Muscular Dystrophy. Our hearts hurt for her. Our hearts hurt for her future. Our hearts hurt for what she may have to endure in her life. But, our God is an amazing God. He has removed the anxiety and worry and given us such peace as we begin our journey down this new path of life, parenting a child with MD. When the worry and anxiety about our 'new' normal enter my thoughts our one true God is there, oh so quickly, to wash it away! Our hearts overflow with love for this funny, smart, courageous, sun shiny, Godly gal, our daughter!
We knew from Molly's referral that a form of MD was possible but God's hand was bigger than any words written on a piece of paper. He knew she was our daughter...He led, He guided, and He protected us from the 'fear' of the unknown. He put us in circumstances and put people in our life that confirmed Molly was to be a part of our family. You can read about how God led us down this path here. He knew Molly was our daughter, chosen to be a sister, a cousin, a niece, a granddaughter, and to have a family who loves her dearly on this side of the world.
Through our Molly, God is changing our family for the better. We are learning to be more compassionate, to be more patient, to more fully rely on our Savior, and to put what is important here on earth ahead of those things that are not.
What an awesome gift He has given us!
Sending you all and Miss Molly lots of love and prayers!!!!
ReplyDeleteMaureen.....I am glad you finally have some answers, but I know they were not what you were hoping for. Molly is a true gift and He has a plan for her and your family that is going to be wonderful! I will keep you all in my prayers.
ReplyDeleteThat Molly is something so VERY special. And YOU are so very special, too! God created you just the way you are... to be Molly's mama :)
ReplyDeleteWe fell head-over-heels in love with Molly the minute we met her. Your family is so lucky!! We are so excited to be a part of her life and to get to know her more. We are all here for everyone!!
ReplyDeleteThe very first time I saw your little angel on the OW blog I could see God shining through her. He is watching over her and knows her ever need. He was there when she was alone and with her still. Praying for peace and guidance for you all. And God bless you all for not letting her special need overshadow God's plan. :)
ReplyDeleteJoy
Joy
We have friends from seminary who have a son diagnosed with MD...great strides are being made for a cure {I'm sure you're aware!} and we are praying it comes quickly!
ReplyDeleteMolly is beautiful and we trust the Lord is working in and through these details!
Much love~
Kam
Hi! Our daughter,Lily, was recently diagnosed with Merosin Deficient Congenital Muscular Dystrophy. Lily was adopted four months ago from BaoTou, China. It seems that our families are on a very similar journey...so blessed that God is in control.
ReplyDeleteHi! Our daughter, Lily, was recently diagnosed with Merosin Deficient Congenital MD (MDC1A). She was born in BaoTou,China and has been home for four months. Our families seem be on similar journeys...so blessed that God is in control.
ReplyDeleteAnd you guys always talk about how brave Molly is and that she is but you have not only been given a brave girl, she has been given a brave family!!! God is so good and you are so trusting of His mighty love that you will be richly blessed.
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